The Gift of Experience II: Conversations with Parents about Hemophilia

The Gift of Experience II Conversations with Parents about Hemophilia The outlook for children with hemophilia keeps getting better Treatments are safer easier to administer and new longer acting products are becoming readily available Specialists at comprehensive hem

  • Title: The Gift of Experience II: Conversations with Parents about Hemophilia
  • Author: Laura Gray
  • ISBN: 1502339951
  • Page: 454
  • Format: Paperback
  • The outlook for children with hemophilia keeps getting better Treatments are safer, easier to administer and new, longer acting products are becoming readily available Specialists at comprehensive hemophilia centers all around the country offer innovative treatments while advancing national standards of care Experts at these centers give patients and their families acce The outlook for children with hemophilia keeps getting better Treatments are safer, easier to administer and new, longer acting products are becoming readily available Specialists at comprehensive hemophilia centers all around the country offer innovative treatments while advancing national standards of care Experts at these centers give patients and their families access to the latest clinical and research developments By emphasizing the importance of early diagnosis and intervention to prevent complications, these specialists create an enormous impact on patients health and long term well being So it s safe to say that there is every reason in the world for parents of children who have been diagnosed with hemophilia to be hopeful about their child s future Nevertheless, having a child with a chronic illness presents many challenges There is much to learn, much to understand, a lot to teach and a new reality to adjust to Concerns about bleeds, joint damage, inhibitors and pain are very real We interviewed parents whose children are treated at the Boston Hemophilia Center about their experiences In this book they share what it s been like to raise a child with hemophilia from birth to age 6 Through their stories, we appreciate that the journey from receiving an initial diagnosis to feeling capable and in control of the situation can take than connecting with a team at a treatment center Home care nurses, other families who have children with hemophilia and myriad of other resources all play important roles in a newly diagnosed family s capacity to cope These families understand what it s like to have a child with hemophilia like no one else can The guidance, understanding and practical tips they offer from their own experience are gifts to others who are embarking on this journey In this book, you ll find excerpts of conversations with 19 parents 15 mothers and four fathers of children with hemophilia A or B The children have mild, moderate or severe hemophilia and come from a variety of backgrounds Some parents knew that they might have an affected child, while it came as a complete surprise to others Despite each family s particular challenges, they have all faced similar heartaches and struggles, made huge achievements and seen unanticipated rewards This book is their gift to you Get A Copy Online StoresAudibleBarnes NobleWalmart eBooksApple BooksGoogle PlayAbebooksBook DepositoryAlibrisIndigoBetter World BooksIndieBoundLibraries Paperback, 262 pages Published September 10th 2014 by Createspace More Details ISBN 1502339951 ISBN13 9781502339959 Other Editions None found All Editions Add a New Edition Combine Less Detail Edit Details Friend Reviews To see what your friends thought of this book, please sign up Reader QA To ask other readers questions about The Gift of Experience II, please sign up

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